The Kidney Precision Medicine Project (KPMP)
In the KPMP, scientists will study kidney biopsies to make a map of the kidney (called the Kidney Tissue Atlas). This map will show important cells, regions, and disease pathways that lead to chronic kidney disease (CKD) and acute kidney injury (AKI).
The research will help answer important questions for people with kidney disease, such as: What type of kidney disease do I have? What will happen to me? What can I do about it? Ultimately, KPMP research will find new markers and treatment targets that make personalized, effective, and safe treatments possible for kidney diseases.
Patients are at the heart of what we do and why we do it. The KPMP consortium is extremely patient-centric, involving patients in every facet of the program. Patient representatives regularly collaborate in a working group focused on the many facets of community engagement. In addition to the community engagement working group, patients contribute to other working groups, from biopsy safety to data integration, to bring their unique perspectives to every discussion. Representatives also provide vital project input during patient panels at each face-to-face meeting.
If you would like to get involved with the KPMP community, contact us. By becoming a patient advocate for KPMP, you will have an opportunity to help improve and transform the diagnosis and treatment of kidney disease for future patients just like you. For more details on the scope of patient involvement activities, read our Patient Primer.
Perspectives from the Patient Circle
Our patient representatives have been blogging about their impressions and experiences with the Kidney Precision Medicine Project. Read on to learn more about the project from their point of view.
This past June, The American Association of Kidney Patients held their 2018 National Patient Meeting in St. Petersburg, Florida. Rob Star, MD presented a session on the KPMP. His presentation highlighted the overall goals of the study with an emphasis on the...
Last year I was visiting my grandmother in the hospital. She was in end-stage renal disease (ESRD) and experiencing heart failure; it was brutal. I went to the hospital cafeteria and saw my cousin Darrell. He didn’t look good. I asked if he was okay and he informed me...
Like the “fresh fish” prisoner in the movie “Shawshank Redemption,” I kept telling KPMP, “You don’t understand. I’m not supposed to be here!” Probably many patients feel that way, but probably because they never asked to have kidney disease, never asked to be on...